Here to listen, inform & support - For general enquiries call 01223-870008


Kidney Cancer UK takes the privacy of its users seriously.

We are committed to safeguarding the privacy of our users while providing a personalised and valuable service. We aim to be clear about what we do with your data and not do anything you wouldn’t expect.

Developing a better understanding of our supporters through their personal data allows us to make more informed decisions, fundraise more efficiently and helps us to reach our ultimate goal of supporting kidney cancer patients and their families.

From May 2018, we will only send marketing communications to those that have stated that they are happy for us to do so via their preferred channel here. Our marketing communications include information about our latest charity news, fundraising, events, and merchandise. Should you wish not to receive these newsletters, please email with ‘Unsubscribe’ in the subject line or click the ‘unsubscribe’ link on each newsletter.

Kidney Cancer UK Facebook Group

Our closed Facebook ‘Kidney Cancer UK Support Group’ is moderated and we reserve the right to remove comments and posts or users without warning or explanation. Visitor or member comments posted to these sites are not the views Kidney Cancer UK or its moderators.

The posting of personal information on a discussion/forum means your information is publicly accessible to anyone viewing the forum. Please take care when posting personal information; we cannot be responsible for the privacy of any identifiable information that you choose to post in our online community.

How do we obtain your personal information?

We collect information in the following ways:

– When you give it to us DIRECTLY; for example if you tell us your story, ring our careline or counselling service, submit a patient grant application, make a donation, sign up for one of our events, purchase our products or communicate with us.
– When you give it to us INDIRECTLY; your information may be shared with us by independent event organisers, for example, fundraising sites such as Just Giving or Virgin Money Giving. They will only do so when you have indicated that you wish to support us and with your consent. Please check their Privacy Policy when you provide your information to understand fully how they will process your data. 

What personal data we collect and how we use it

The type and quantity of information we collect and how we use it depends on why you are providing it.

If you support us, for example make a donation, volunteer, register to fundraise, sign up for an event or buy something from our shop, we usually collect:
– your name
– your contact details; address, phone number, email

Where it is appropriate for example applying for a patient support grant, we may also ask for:
– Information relating to your health
– Why you have you decided to donate to us

We mainly use your data to:
– Provide you with the services, products or information you asked for
– Adminster your donation or support your fundraising, including processing gift aid.
– Keep a record of your relationship with us
– Ensure we know how you prefer to be contacted
– Understand how we can improve our services, products and information.

If you enter your details onto one of our online forms, and you don’t ‘send’ or ‘submit’ the form, we may contact you to see if we can help with any problems you may be experiencing with the form or our website.

Sharing your Story
Some people choose to tell us about their experiences with kidney cancer to help promote our work. They may take on a role as an Ambassador, or attend our patient focused events. This may include them sharing sensitive information related to their health and family life in addition to their biographical and contact information.
If we have confirmed consent of the individual, or their parent or guardian if they are under 18, this information may be made public by us at event, in materials promoting our campaigning and fundraising work.

Support for individuals affected by Kidney Cancer
We run services to provide support to individuals affected by kidney cancer, and collect personal data in order to provide those services. Our Health Professionals answering the careline collect sensitive personal data about your health when you speak to them. They will use this information to answer your questions and give advice and guidance. We will also use it for training, quality monitoring or evaluating the services we provide.

Children’s Data
if we support children, we will seek consent from a parent or guardian before collecting information about them. Information could be collected if a child is attending one of our events, but it could also be sensitive personal data if they are accessing our careline service.

How we keep your data safe and who has access

We ensure that there are appropriate technical controls in place to protect your personal details. For example our online forms are always encrypted and our network is protected and routinely monitored.

We undertake regular reviews of who has access to information that we hold to ensure that your information is only accessible by appropriately trained staff.

We do not disclose your personal data to any third party organisation without your consent. Please note that we reserve the right to access and disclose individually identifiable information to comply with applicable laws and lawful government requests, to operate our systems properly and to protect both our users and ourselves.

We will always let you have a copy of personal information we have about you, should you request it, and you may correct it if you wish.
To request a copy of your personal information please email

Your right to know what we know about you

You have the right to ask us to stop processing your personal data, and if it’s not necessary for the purpose you provided it to us for we will do so. Initially should you have concerns please either ring us on 01223 491991 or email us at

You have a right to ask for a copy of your information we hold, although in the case of our Careline or Counsellng Service we make a £10 administration charge for the detail.
If there are any discrepancies in the information we provide, please let us know and we will correct them.
If you wish to access your information, please ring us on 01223 491991 or email and we will provide you with a form to complete, as well as asking you to provide proof of identity, for example a utility bill, and return by post to Kidney Cancer UK, The Old Coach House, 56 High Street, Harston, CB22 7PZ.